Three Conceptual Models of Patient and Public Involvement in Standard-setting: From Abstract Principles to Complex Practice

摘要: AbstractClinical practice guidelines have been critiqued for prescribing standardized care that neglects patients’ personal circumstances and knowledge in health decisions. To make more patient centred, standard-setters are urged to involve patients the public guideline development use. Despite widespread principled support such Patient Public Involvement (PPI), underlying principles guiding PPI standardization of mired on confusion contradiction. Based literature general, informed by empirical research development, it is possible identify three rationales justify clinical standard setting. Each rationale gives rise a conceptual model which outlines distinct purpose participation, who be included, what they expected contribute. The Consumer Choice aims autonomous consumers personalize care. Democratic Voice recommendations be...